Wednesday, September 7, 2011

It has a name!

(Okay, I hope you think this picture is as hilarious as I do. If you can't tell, he's getting a massage.)

After the long wait to get in to see the ONLY developmental pediatrician in Austin, and an even looonger time (3 years 9 months to be exact) of wondering at Cameron's oddities, we finally have a name for his official medical condition (and a justification for our parenting abilities): dyspraxia. Cameron has a neurological condition called dyspraxia. His mixed language disorder is a side symptom.

So what is it? The short definition is: difficulty in conceiving of, planning, and carrying out an unfamiliar motor action or series of motor actions. I.e. he has trouble doing new things. It is a lifelong condition, but the good news is is that it is not linked to intelligence. For example, we read that the actor who plays Harry Potter in all the movies has dyspraxia. So Cameron will most likely be, for all intents and purposes, a normal functioning adult.

Last night Tyler and I were researching dyspraxia on the internet and came to a site that listed the symptoms in children. We were actually laughing because we could not believe how well they described Cameron in so many ways! For example (the bolded items are of no extra consequence):
  • Irritable and difficult to comfort – from birth
  • Feeding difficulties: milk allergies, colic, restricted diet
  • High levels of motor activity: constantly moving arms and legs
  • Repetitive behaviors: head banging or rolling
  • Continued problems with development of feeding skills
  • Toilet training may be delayed
  • Delayed language development: single words not evident until age 3
  • Highly emotional: easily distressed, frequent outbursts of uncontrolled behavior
  • Concentration limited to 2 or 3 minutes on any task?
  • unable to stay in one place longer than 5 minutes
  • easily distressed
  • temper tantrums
  • Difficulty Pedaling Tricycle or Similar Toy
  • no sense of danger, jump from inappropriate heights
  • Continue to be Messy Eaters
  • prefer to use fingers to feed
  • Lack of Imaginative Play
  • Do not enjoy ‘dressing up’ or playing appropriately in the home corner or Wendy House. – Limited creative play
  • Isolated in Peer Group
  • prefers adult company
  • Limited Response to Verbal Instructions
  • slower response time
  • problems with comprehension
  • Limited Concentration
  • tasks often left unfinished
Wow! So that has been what's been going on all these years! I have gone from feeling like maybe I am not so great at parenting to thinking I rock at it. No wonder Jane has been such a treat. Here we were thinking this was normal parenting!

So what's next? 1 hour of private occupational therapy a week and 2 hours of private speech therapy a week. It will be a long and hard road (and what, it hasn't already been so far or something?) but I think I'm up to the task. Heavenly Father wouldn't have sent him to me if I weren't. And Cameron is making great strides in his language. Tonight I realized he was using "ing" on the end of verbs finally! ("I jumpin" and "I dancin") I am just so relieved to finally have some answers!

10 comments:

Melanie said...

SO GOOD to know! You two ARE good parents. I am really happy you have answers too. We will continue to pray for you.

The Mom said...

That picture is the best!!! So so funny! I think you have a great attitude about everything. And Cam will be so much better with the good help he will get. Thank you so much for being good, loving parents and trying to always love and help Cam even when it was hard.
Sweet boy!!

Frazier Family said...

Hard, but really glad you have a direction now! I think in life that we can face things a lot easier if we just know what we are up against. Go Cam!

Natalie said...

it is SO awesome you guys can figure this out now at such a young age! Many people go much of their lives without being diagnosed with mental illnesses or disabilities, and once you know about it you can have such an easier time dealing with it.
What a little sweetie, that cameron! I love the picture of you guys at the top! xoxo

Mama said...

Keep being the good parents you are. Heavenly Father is mindful of you. He will bless you according to your needs. Patience is a virtue and should be carried with you always.
Patience could be your imaginary friend, keep a chair for them at the table, in your pew at church, in the back seat, etc.
Your lives will be blessed because of the good things you do for Cameron. You know have the opportunity to bless many people's lives through your experiences.

Mama said...

I really can spell. The previous comment should say now, not know.

Elizabeth said...

Hi Mindy! I had to blog stalk you to tell you you are in THE HELP and I had no idea you were an actress...;)...but now I have to also tell you you are an awesome mama! Our three year old boy was in the early intervention program for speech delay and it was stressful! Way to go in figuring out the whole picture. I feel like we still have some more figuring out to do sometimes on ours...

Holly or James said...

HOW CRAZY is that list???? Those things are Cameron to a TEE!! Wow! Thank heavens you and Tyler finally know what is going on and how to help him! I'm so relieved for you guys!!

thanks for sharing. loves to cam cam!

Kim and Jim said...

Wow, I had no idea you were going through all this! I'm so glad Cam can get into therapy, and I hope it will make a world of difference for him. Miss you guys!
Kim

Heidi a.k.a. spaceghost said...

Pix is darling! You guys are funny.
I'm so happy to hear you guys have answers! THank heavens! Everything will improve going forward now, you know what to expect and how to help him. Thank heavens for doctors and medical science! You guys are great parents - you have always done your top-notch best and loved both your children silly.